I ignorantly thought nothing would be needed until we got closer to Addy's second surgery. Imagine my surprise when we were told that early next week we will need to go to for her first heart catheter. Near her aortic arch, that has been rebuilt, is a portion that is narrowing. For a single ventricle baby that is bad news, her heart is already working too hard so they can't let it have any resistance. A catheter will be fed into her heart and a balloon will be inflated to enlarge the opening. I'm grateful that something can be done about this but sad that we will be back in the hospital after just three weeks. It's a same day surgery but she will be kept over night in the Cardiac Intensive Care Unit just to be safe.
We also met with speech therapy to assess feeding. Let's just say the feeding tube is going to be around for awhile, I don't know why I was so surprised. I know that our little one is critically ill but for a short time I think I had convinced myself otherwise. No worries, a little sleep and things will be back in perspective.
There were three of us having babies with HLHS at Primary Children's the same week. Precious Hope returned to heaven on the 31st of October. Cute little red headed Colten ended up having a different diagnosis but is returning to heaven tonight. My heart is breaking for these amazing families.
She wore herself out trying to get her arms free.
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