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Monday, December 19, 2016

Early Intervention

Primary Children's sets you up with Early Intervention right away so when these two sweet ladies came to visit I wasn't sure what to expect.  The first visit was to decide if we qualified...we probably could have verified that over the phone :)  Today they came again to establish a plan of action.  We are going to work on getting food by mouth and another swallow study.  Her occupational therapist has 30 years of experience so I'm counting on it to help us learn to eat.  We take so many things for granted.  I feel like the longer she goes without eating the harder it will be to teach her.  Babies with HLHS spend very little time on their bellies so we are going to work on strengthening neck muscles without putting pressure on her heart.  If she's asleep and I recline too far she'll fuss and wake up until I sit up again.  Adelina has pretty good head control for her age and considering all the tubes that have been stuck to her head and neck.  We are so grateful that she is doing so well.

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