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Friday, December 23, 2016

It's happened...

Wednesday I started to notice that Adelina's oxygen saturation was sitting between 75% and 77%.  She should be between 75% and 85%.  Then, she started to sit right at 75%.  By the evening she was going between 74% and 75%.  I was trained at the hospital on how to use the oxygen but had never actually turned it on.  I had also never hooked the tube to the tank and I couldn't hear it when it was on.  Thank goodness for the nurse practitioner.  I still went to bed frazzled.  We were able to get everything running and with the lowest setting we are now sitting between 77% and 78%.  The sad part is that we only expect to go up from here and because the tank is not light our mobility has gone down.  I hope that we will get more used to it so that Addy isn't always stuck in the same room.  Who am I kidding, I don't want to always be stuck in the same room and I don't want to limit holding her because of her tubes.  I put her to bed and she was working so hard to get the oxygen off then with one quick swipe she'd pulled her feeding tube out.  I have a feeling she is going to have a LOT of tape on her little face.

We went up to PCH and were told that she is growing and the shunt is narrowing so the oxygen doesn't surprise them at all.  I was hoping that they would say we had overreacted and she didn't need it but obviously that didn't happen.  We are hoping to make it to four months before she needs more intervention but right now she is only nine weeks old.

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