A cold swept through our family a couple of weeks ago but our poor Adelina is having the roughest time with it. We have been warned what a big deal it is for our little fighter to get sick and they are right. I took her in to Primaries for an appointment a couple of days ago and luckily this cold is all in her head so her oxygen levels are holding steady.
We had more good news while there. Adelina (once she is over her cold) no longer needs oxygen at night unless she is sick. It's a good thing too since she's been getting tangled up in it. Right now we are on four meds multiple times a day. Next week we get to stop one of the them and we are going to outgrow the dose of the other two and then stop them at our next appointment. That will leave us on just half a tablet of Aspirin every day (she will always be on Aspirin).
Speech therapy has been given the go ahead to be a little more aggressive in teaching our baby girl to eat. We are working to get her stomach to expand so that she can take a full feed in 30 minutes. We have a long way to go but a solid plan. We will try this method for 2-3 months. If it does not work we will get a G-tube but we hope she will be able to take everything by mouth and not need the G-tube.
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