Great News

We are cleared to travel home!  We just have to go to one more visit in May to be sure but we are okay to travel home after almost a year.  Brent will fly out in May and we will fly back with him when the kids are out of school.  We are so excited!

Adelina had an appointment with speech and nutrition on Thursday and after that we saw her cardiologist.  Speech is on board with teaching her hunger before we go straight to the Gtube and has started us on the road to bolus feeds.  In other words we are slowly increasing how much she gets in three hour blocks until she is being fed for one hour, off for two, on for one, etc.  During the night she will still be continuously fed.  So far we have given her bananas, applesauce, a smoothie (which she liked).  She likes to suck on apples.

Dr. Pinto came in and turned off her oxygen!!!  She did just fine and now I have the song from Pinocchio stuck in my head, "I've got no strings to hold me down..."  We can go outside without several minutes of planning.   I can follow the kids out to the garage.  We are no longer a tripping hazard.  So many wonderful freedoms.  We are still on at night but have really enjoyed the freedom of our last couple of days.