Our little Addy is getting an Echo now and her heart looks great. We are so grateful that her heart is doing well. She does have a collapsed lung but she doesn't look like she's struggling so they decided that most likely she has acid reflux and is aspirating. Her tube is being moved back to the NJ but this seems to be the name of the game with kids that have HLHS. In fact our doctor just told us that we've moved to the next stage, feeding issues.
Apparently she has been doing so well that everyone had assumed she'd go to the floor today so they were discouraged that she'll be here one more day. Their discouragement didn't pass to us, we are just happy that she is stable and progressing.
Our bright news of the day is that they want us holding her as much as possible and moving her around, this will help her clear our her lungs. They know that these babies need to be held more so they are really supportive, yay!
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