Looking good

Our appointment was full of good news!  Adelina's heart is doing as well as they wanted.  Her oxygen saturations are in the high 80's, which is amazing :)  Her EKG looked good and she no longer has wet lungs.  She is also not aspirating liquids into her lungs.

None of her meds have changed and she will remain on oxygen for some time which kind of surprised me but her cardiologist explained that the main concern after this surgery is fluid build up in and around the lungs, so the oxygen is more like a medicine than a life line.

We saw the feeding clinic and were cleared to give her bottles once a day and turn off her feeds for two hours a day.  We tried the bottle the first day and she took nothing :(   I was a little disappointed but hey, we have her and I can live with a tube.

I asked about going back to Texas and was told that we can talk about it in May.  It wasn't a no so I'm hopeful :)

Next appointment coming up

We are meeting with our cardiologist in the morning.  It's been nice to have a little break from the hospital :)

Cuddle time

I just can't get enough of this little one.  If I could hold her all day every day, I would!

We believe in sleep

We were awake for one hour before we decided a nap was in order.  I walked away for just a minute and came back to this peaceful little one.

4 months old

We are so excited for Adelina to hit four months old!  She is such a light to our lives with such a ready smile.  She is determined to roll over even though she is not allowed to just yet :)  She has found her voice and it's so sweet.  She loves to sit up and see the world.

No news is good news, right?

I feel terrible that I have not posted since the 5th.

First, Brent picked up the stomach flu on the 6th so I ran him to my parent's home... with the computer.  Yes, that does explain a lot :)

Adelina had some issues with her incision needing to drain so she needed a little more help with pain.  I would call in the morning to see how her night was and they would reply that it was "rough."  Eventually we decided that we were not on top of her pain so they added morphine and were able to get her back on track with just one dose.  Good thing too because her IV failed shortly thereafter.

We then kept her on round the clock doses of Tylenol and Oxycodone.  The combination worked but if they waited even 15 minutes to give her the oxy she would struggle for a couple of hours.  They kept her on both and we were discharged on Thursday the 9th.  We were sent home with instructions to wean her off the oxy in the next couple of days.  Now that I've had this experience I wish they would have done that at the hospital.  We have now had four nights of very little sleep.  The first night I had meds to give her every hour- two hours and she was upset in between, the second night was the same.  I did not wean her completely until last night and even then we had a rough night.

Luckily, she seems like her happy self again this morning.  I'm hoping she will take a great nap this afternoon so I can join her :)

I keep hearing comments about why I can't take care of other things.  We still have babysitters come in the morning when Brent is not here and my mother takes care of the kids in the afternoon.  It is all I can manage to pump (at 8, 11, 2, 5, 8 and before bed), keep up on meds (at 8, 2 and 8 not including pain meds), mix bottles (usually around 4), change out feeds (8, 12, 4, 8, and before bed), clean up throw up (we went through 8 outfits and blankets on Friday), change clothes, change diapers etc.  This part I have down pretty well the real trick is basics like making and eating food? Showering? Laundry? Washing bottles and pump parts? etc.  I am sure we will get there but right now it's taking a community to function and I am so grateful for that community :)

Daddy love

Brent guarded Adelina all day so that her pain was well managed and she was allowed to sleep for six hours straight.  Thank goodness for her Daddy!