Adelina update - we had surgery again on Friday because our chest tube was coming out, in true Addy fashion, instead of replacing that one she came out with two. We learned that instead of the typical one pocket of fluid, we have several and we don't know if any are connected, this makes it very difficult to drain. Plan A through E have been tried, one is in progress, G happens tommorow. They will be putting TPA in her chest tubes. She also had a PICC line placed Friday (yay for pain free blood draws). Unfortunately, it was too deep so tomorrow it will have to be replaced.
Thankfully, we have had many tender mercies. Addy made a little friend, August, and he has made her days. He got to leave today but his sweet family left her with such thoughtful gifts and good memories.
*Our tower has grown since this picture was taken. We are now back on oxygen and getting our nutrition through TPN and lipids. She is allowed to eat fat free foods and 800mls of fluid but she's not eating enough.
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