I'll start with our most recent and work back. This week she was looking little dusky and throwing up (not all too uncommon for us). Doctors decided to life flight her to TCH just in case her stent in her heart was failing. It turned out she was anemic and was given a blood transfusion. It feels like we gave her a boost of energy, we can barely keep up.
On the 11th we went in for a heart cath. It was determined that her stent was full of scar tissue (I have a similar issue and unfortunately passed it on). So, instead of replacing it in a couple of years, it lasted 6 months.
The 3rd we went for feeding and learned that we are NOT ok with this method. The therapist wanted to create aversion and then "work through it." We aren't going back but have once again started a wean through "growing independent eaters." We are on day 3 and she has greatly picked up her solid feeds but hasn't changed much on liquids.
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