Everything isn't perfect but we are out of the hospital. We are still chasing oxygen but on the low side, anywhere from room air to a half a liter. Adelina really is a dream baby. Her schedule isn't thrown off from all these crazy days and nights. She lights up when the nurses walk in the room and they are so sweet with her. She HATES having her temperature taken and puts up with the blood pressure cuff. She loves the different mobiles and being able to sit up. If I could do crunches like she does this extra baby weight would be long gone :)
We are getting back into the swing of things but will see a doctor every week until her surgery, some twice a week. We have RSV shots, cardiologist appointments, clinic appointments, at least one echo and likely another heart cath. We expect her next open heart surgery the third or fourth week of February. I want the best for her but I am NOT ready to send her back in for surgery so we will enjoy the time we have now, we sure love our Addy.
On a side not Adelina had para influenza 2 when she was admitted. We are so grateful that it has been mild. She is having a hard time kicking it but it could have been so much worse.
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